Showing posts with label death. Show all posts
Showing posts with label death. Show all posts

Wednesday, November 16, 2011

on a slightly different note


Did I overstate my case? I know that I am not the only person that objects to using the terminology of terminal illness. The phrase has a decidedly deathly ring to it. When you have a terminal illness you are going to die. Everything until that point is just a wait for death. Even though I am more likely to die from this cancer than from any other cause, I could live for another ten years or more. No one knows.

In any event, writing about the issue certainly put an end to being upset.

My son believes that the psychologist wanted me to face the fact that I am going to die. At some point in the session I told him (the psychologist) that you could only face death when it happens. I don't think he agreed.

Days later. The tiredness and low energy that lasted till the weekend seems to have gone. Yesterday managed shopping, saw a movie - 50:50, managed some shopping and a meeting in the evening.

50:50 was an interesting film. Unfortunately we had to shiver in a very cold cinema while the temperature outside touched 35 degrees Celcius (why can't I find a degree symbol on the iPad?). The film is about a young guy that gets cancer. Interesting in part with a Hollywood decreed happy ending. There was much that we could relate to though.

I bought a pack of hand sanitisers! Something that I would have rejected as bordering on paranoia not so long ago. I keep them to wipe my hands when I have had to shake lots of people's hands. In my book this is not recommended for normal people. Just for the likes of me who have become prone to infection through chemotherapy. One guy was clearly sick with a streaming nose. I refused to shake his hand.

So I have been feeling strong once again. Tomorrow it's time for chemotherapy. That is a positive thing. I feel energised for a few days until the fatigue sets in. Perhaps it is the cortisone that makes all that energy available. The doctor says that my condition is stable. Another positive. No need for me to focus on dying!

Saturday, November 12, 2011

Turbulence .... terminal illness


The night is hot. I have been tossing and turning, my mind working through issues.

Something that seems to have upset me was Thursday morning's counselling session. During the course of the hour long session, the psychologist referred to me having a 'terminal illness' at least a dozen times. I don't believe that the use of this terminology is helpful. For one thing, I am trying to beat this thing. Then he came back to my prognosis. The Oncology Centre does not give a prognosis "because we don't know" as they put it.

As for me, I have not been focusing on death or on how long I have left. My focus is on life and prolonging my life and health for as long as is possible. The life expectancy and response to chemotherapy very much "depends on the patient" as the doctor likes to put it. But that seems to be of paramount importance to the psychologist. What is your prognosis? He cannot understand that there is none. He would even like me to see another doctor to get a prognosis!

I have decided not to return to counselling under these circumstances. To me, these sessions have become destructive. They do not help. I want to focus on maintaining my health and improving it where possible. Like everyone else, I will die at an undetermined date in the future. It will not help me or anyone else to be told that I have three or six or even seventeen months left.

Perhaps my wakeful state can be put to rest.